The KBG Syndrome Association and Every Link Matters are proud to be hosting the Inaugural KBG Syndrome Family Weekend in Tempe Arizona in 2024. Both of our organizations share a similar mission to reach out to the KBG Syndrome Community and make a difference in their lives.
This is an opportunity for families to join together for a fun and powerful weekend of inclusivity, empowerment and connections. Together, we hope to create a unique experience for families to be together, meet new friends, ask questions and just be themselves in a safe and fun environment.